Only specifically authorised personnel within ISD and Quality Health have access to the names and addresses of the individuals who are sent the survey.
Quality Health has only been given your name and address for the purpose of mailing you the survey and they are required to destroy this information once the survey fieldwork has been completed. They have signed a confidentiality agreement which stipulates this. They do not have access to any other information about you.
ISD also securely shares some identifiable data with staff at the NHS Central Register (NHSCR), who run checks to reduce the risk of sending a survey pack to someone who has died.
Individual survey responses are tracked and stored using a unique survey ID number, they will not be linked to your name and address. Only specifically authorised NHS analysts at ISD will retain a record of the identity of those who took part in the survey and this will be stored separately from the survey responses.
No access to your identity, including name and address, will be given to individual hospitals, NHS Boards, the SG, Macmillan or any other organisation or individual. The health and care professionals involved in your treatment or care will not know whether or not you took part in the survey.
All of the organisations involved in handling your name and address for the purpose of this survey adhere to the Information Sharing Toolkit Scotland. This brings together all of the statutory requirements, standards and best practice that apply to the handling of personal information, including requirements set out in Data Protection legislation. All transfers of personal or identifiable data are carried out securely.