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Proposal for Scotland's National Dementia Strategy  2016-19: March 2016

This proposal for Scotland's National Dementia Strategy 2016-19 is the outcome of extensive discussion and feedback from the Dementia Dialogue events between November and January and written submissions on the dementia consultation paper. This paper lays out Scottish Government proposals on the major areas of policy and direction on dementia for the next three years, and will form the basis of Scotland's next three-year National Dementia Strategy which will be published later this year, in 2016:

National Dementia Dialogue 2015-16 Engagement Report

This report provides a short analysis of comments and feedback captured as part of the aforementioned Scotland’s National Dementia Dialogue 2015-16.

National Dementia Dialogue 2015: Have Your Say

Scotland's second three-year National Dementia Strategy was launched in 2013. The key priorities include: continuing to improve diagnosis rates and post-diagnostic support; ensuring the highest quality of care and support for people with dementia at every stage of the illness; improving service response in acute care and supporting the growth of dementia-friendly communities.

The Scottish Government is now reviewing the progress of the strategy and a third National Dementia Strategy for Scotland will be produced in 2016. Events have been held across Scotland to allow interested parties to comment on the progress of the strategy to date, identify the gaps, opportunities and priorities and to help shape the direction of the next strategy and to contribute their views on the questions posed by The Scottish Government’s National Dementia Dialogue 2015 consultation paper:

If you have not been able to attend any of these events, but would like to contribute your views, please email them to NationalDementiaDialogue2015ConsultationPaper@gov.scot by January 29, 2016.

Scotland's National Dementia Strategy 2013-2016

Post Diagnostic Support

Everyone diagnosed with dementia from April 1, 2013 is entitled to a minimum of one year's worth of post-diagnostic support, coordinated by a Link Worker. The following documents are designed to support delivery of the relevant HEAT target:

The Information Services Division (ISD) of NHS National Services Scotland also offers information:

Improving Diagnosis of Dementia

Diagnosis of dementia is important as the diagnosis as the gateway to information, support, care and treatment for the person with dementia, their family and the carers. A target to increase the number of people with a diagnosis of dementia was delivered across Scotland.

It was replaced by a new standard to maintain the proportion of people with a diagnosis of dementia on the Quality and Outcomes Framework (QOF) dementia register and other equivalent sources.

Improving dementia care in general hospitals

The Chief Nursing Officer for Scotland is leading a programme of improvement activity with NHS Boards and others, into the care of older people, including those with dementia at any age, in general hospital care settings. To complement this, Healthcare Improvement Scotland are undertaking a programme of inspections into these areas of care.

The Scottish Government is supporting Alzheimer Scotland in appointing a dementia specialist nurse in every NHS Board in Scotland, to advise on change and improvement across their Board area.

The Scottish Government response: Mental Welfare Commission report - "Dignity and Respect" - August 2014

The Scottish Government response to the Mental Welfare Commission report Dignity and Respect describes how the Scottish Government will support NHS Boards in implementing the Mental Welfare Commission's recommendations; and what action it is taking nationally to improve care in these settings, including the delivery of commitment 11 of the current Dementia Strategy:

Dementia Strategy

Scotland's first Dementia Strategy was published in June 2010. It sets out the work that the Scottish Government and its partners in NHS Scotland, local government and the voluntary and private sectors are doing to improve support, care and treatment for people with dementia, their families and carers:

Dementia Demonstrators Interim Report

Emerging messages from the Dementia Demonstration Sites have been published in a report by Professor Bob Hudson from Durham University:

Standards of Care for Dementia in Scotland

People with dementia retain the same rights as anyone else in society but the nature of their illness means that they often have great difficulty in protecting their own rights.

There is still stigma and discrimination against people with dementia and they and their carers often feel, with some justification, that they are treated with less respect, dignity and understanding than other members of society.

Standards of Care for Dementia in Scotland were developed which relate to everyone with a diagnosis of dementia in Scotland regardless of where they live, their age, the supports they receive or the severity of their illness.

This includes younger people, people with a learning disability and people with rare types of dementia. They apply to people living in their own homes, care homes or hospitals, especially general hospitals:

Promoting Excellence

Promoting Excellence, a skills and knowledge framework for dementia, details the knowledge and skills all health and social services staff should aspire to achieve in relation to the role they play in supporting people with a diagnosis of dementia, and their families, and carers.

NHS Education for Scotland and The Scottish Social Services Council are delivering the Promoting Excellence implementation plan, which has included training over 400 Dementia Champions to date.

Improving Support for People with Dementia and their Carers

The Cabinet Secretary for Health, Wellbeing and Cities Strategy has indicated that she intends to introduce a national commitment from 2013 of a guaranteed minimum of a year's post-diagnostic support, coordinated by an appropriately skilled link worker.

This commitment will also help drive improvements across the whole system of care.

National Action Plan to improve care in acute general hospitals

We have agreed a 10-Point Action Plan, outlined in Scotland's National Dementia Strategy 2013-16, developed by this group, to support implementation of the Standards of Care for Dementia in acute care to make sure the current system of hospital is working and to maximise the impact of the investment over the last two years in the capability and capacity of staff operating in those settings. It will support service transformation and support strategic ownership of this agenda at an NHS Board level.

The Action Plan will help focus and coordinate a range of initiatives taken forward over the last two years. The Action Plan's 10 headline areas have been developed over recent months by the National Dementia Standards in Hospital Implementation and Monitoring Group.