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Dementia Post Diagnostic Support

Current National Performance

The third round of national performance data for the dementia post-diagnostic LDP Standard was published in February 2019, relating to performance during the period 2016/17. Please note that these figures are published as management information because of variable data quality. 

8,178 people were referred for dementia post-diagnostic support (PDS) in 2016/17. This equates to 46.7% of people estimated to be newly diagnosed with dementia in Scotland in 2016/17.

Of those people newly diagnosed with dementia during 2016/17 who were referred for post-diagnostic support (PDS), 83.9% (6,830/8,145) received one year's support. Please note the calculation of the LDP performance figure excludes the 33 persons still undergoing PDS . 

LDP Standard

People newly diagnosed with dementia will be offered a minimum of one year's post-diagnostic support, coordinated by a named Link Worker.

Dementia Post Diagnostic Support LDP Standard

Why is this LDP Standard important?

People with dementia benefit from an earlier diagnosis and access to the range of post-diagnostic services, which enable the person and their family to understand and adjust to a diagnosis, connect better and navigate through services and plan for future care including anticipatory care planning. This Standard supports the improvement of local post-diagnostic services as they work alongside and support people with a new diagnosis of dementia, and their family, in building a holistic and person-centred support plan.

The stated government ambition is that everyone newly diagnosed with dementia is offered a dedicated post-diagnostic service. There are no specific tolerances set either for the number of people being offered the service or the number of people completing.

The Scottish Government is working with stakeholders on improving the national post-diagnostic service offer by increasing capacity and capability and supporting improvements and innovations, with the aim that more people are offered the service year on year and are offered a more consistent and high quality service. We are also working with services to understand in more detail the reasons for non-completion of the service.

How are we performing?

There are two elements to the standard: firstly, the number of newly diagnosed dementia cases in a performance year who are offered the service, expressed as a percentage of the overall estimate of newly diagnosed dementia cases within that performance year; and secondly the percentage of those referred for PDS in that performance year who received a minimum of a year's support .

i) Referrals for Post Diagnostic Support as percentage of estimated Newly Diagnosed

In financial year 2016/17, 46.7% of people estimated to be newly diagnosed with dementia were referred for dementia post-diagnostic support.

Currently although the number of people referred for PDS is an actual count (8,178), the annual expected number of newly diagnosed dementia cases is an estimate (17,496), and hence the percentage of newly diagnosed cases referred for PDS is also an estimate.

NHS board level performance is shown for the most recent time period (2016/17) in the table below, as are the estimates for the previous two years 2015/16 and 2014/15.

The table shows an estimated percentage of newly diagnosed people with dementia referred for PDS.

NHS Board 2014/15 2015/16R 2016/17P
Ayrshire & Arran 54.4% 40.3% 35.6%
Borders 26.2% 50.9% 37.0%
Dumfries & Galloway 44.6% 54.2% 60.2%
Fife 32.1% 64.3% 59.7%
Forth Valley 39.8% 39.4% 43.9%
Grampian 21.2% 17.1% 18.6%
Greater Glasgow & Clyde 42.7% 45.5% 56.3%
Highland 28.5% 25.2% 32.5%
Lanarkshire 49.3% 56.0% 61.3%
Lothian 25.2% 49.8% 44.5%
Orkney 20.3% 15.9% 10.7%
Shetland 67.6% 56.2% 72.0%
Tayside 51.5% 47.7% 55.4%
Western Isles 1  40.0% 0.8% 26.7%
Scotland 38.1% 43.8% 46.7%

1 There is limited 2015/16 data for NHS Western Isles due to this service being temporarily closed.

R Figures for 2015/16 have been revised based on most recent submissions by NHS Boards.

ᴾ Figures for 2016/17 are provisional subject to all service users completing their support

 

ii) Completion of Post Diagnostic Support

The LDP Standard is that all people newly diagnosed with dementia receive a minimum of one year of post-diagnostic support (PDS) and have a person-centred plan in place at the end of that support period.

In financial year 2016/17, 83.9% (6,830/8,145) of people diagnosed with dementia who were referred for post-diagnostic support received one year's support. Those currently still undergoing PDS were excluded as their outcome was not yet ascertained.

NHS board level performance is shown for the most recent time period (2016/17) in the table below, as are the figures for the previous two years 2015/16 and 2014/15.

The table below shows the percentage of people who received PDS support for 12 months. 

NHS Board 2014/15 2015/16R 2016/17 P
Ayrshire & Arran 76.4% 96.1% 97.6%
Borders 100.0% 92.7% 87.9%
Dumfries & Galloway 91.6% 97.4% 93.5%
Fife 95.8% 89.0% 88.1%
Forth Valley 71.7% 65.0% 65.8%
Grampian 86.0% 89.7% 92.2%
Greater Glasgow & Clyde 88.3% 83.5% 83.9%
Highland 81.9% 84.8% 87.8%
Lanarkshire 86.1% 83.5% 88.5%
Lothian 71.5% 57.7% 56.0%
Orkney 100.0% 100.0% 77.8%
Shetland 77.1% 90.2% 92.6%
Tayside 96.0% 97.8% 99.2%
Western Isles1  37.0% 100.0% 93.8%
Scotland 85.1% 82.6% 83.9%

1 There is limited 2015/16 data for NHS Western Isles due to this service being temporarily closed. 

R Figures for 2015/16 have been revised based on most recent publication by NHS Boards. 

P Figures for 2016/17 are provisional subject to all service users completeing their support. Those still undergoing PDS are excluded from the LDP calculation.

Further Information

Scotland’s National Dementia Strategy 2017-2020

Dementia Post Diagnostic Support NHS Board Performance 2016/17

Estimated and projected diagnosis rates for dementia in Scotland 2014-2020

Dementia Post-Diagnostic Support LDP Standard

Mental Health Summary Statistics

ISD Dementia Information

Related National Outcomes